We are a group of parents/ carers in the UK who are affected by someone with 48 XXYY syndrome. We decided to set up a UK support group in May 2015 and launched it at the conference held in the Peak District. We hope this site helps you and if you would like to see other articles put on the website, please contact us.

Meet Our Volunteers

The Faces Behind our Group

We Couldn’t Do It Without Them


Jocelyn is mother to Jack.

Nicola Smith

Nicola is the mother to Sam and long suffering wife to Chris.

Chris Ralph

Chris is our resident techie and responsible for the website.